Simons Searchlight Quarterly Report - October 2025

Our friends at Simons Searchlight have released their third quarterly report of 2025.

Check out the report on the Simons Searchlight CUL3 page here: https://www.simonssearchlight.org/research/what-we-study/cul3/

These quarterly reports include data on age ranges, developmental and behavioral conditions, neurological and gastrointestinal symptoms, and community participation progress - all based on medical history information shared by families.

By continuing to complete surveys over time, you can help researchers track changes, milestones, and long-term outcomes - driving progress in understanding this condition. Your participation truly makes a difference!  

*Not part of Simons Searchlight yet? Learn how you can contribute to research and and be included in the next report: https://www.simonssearchlight.org/why-join-simons-searchlight/