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About Us

We are devoted parents who are passionate about creating a community of support and advocating for those with CUL3-related neurodevelopmental disorder.

Following our son's own CUL3 diagnosis in 2022, we quickly realized the need for more resources and support for families who are newly diagnosed with this rare disease. We also identified the need for enhanced awareness among healthcare providers and more accessible resources to help improve delivery of care. Consequently, we recognized the necessity of working with researchers to advance knowledge on CUL3-related disorders.

We therefore established this non-profit to help drive connection, support, awareness, and the advancement of research for CUL3-related neurodevelopmental disorder. By forming a patient advocacy group, we hope to make a meaningful impact on the lives of those affected by this rare condition.

CUL3 Support & Awareness is a not-for-profit corporation incorporated under the Canada Not-for-profit Corporations Act (corporation number: 1504346-8). 

Our Mission  

Our mission is to help individuals and families living with CUL3-related neurodevelopmental disorder by fostering connection, providing support, raising awareness, and funding research. We are dedicated to empowering families by building a supportive community, providing resources and education, and helping to further the scientific understanding of this rare condition.

Find & Connect

Support 

Awareness

Fund Research

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