top of page
Unity and love partnership as ropes shaped as a heart in a group of diverse strings connec

Family Advisory Committee

As we are a newly formed nonprofit patient advocacy group, we are looking to establish a Family Advisory Committee to help support our work. This committee will be composed of a small group of committed parents/caregivers of children with CUL3 who are interested in volunteering their time to help further our goals. 

This committee will be a forum for families to: 

  • Provide feedback and advice on the work of the nonprofit patient advocacy group to help guide it forward. 

  • Share their personal experiences with CUL3 and provide insights on how best to connect with and support families.

  • Help organize fundraising and awareness-raising events to increase visibility and support.

If you are interested in joining the committee, please contact us

bottom of page