Board of Directors
Amanda Nolan
Co-founder / Chair
Amanda’s journey as a rare disease advocate began with her son’s diagnosis of CUL3-related neurodevelopmental disorder in 2022. Like many families affected by rare genetic conditions, she now found herself navigating a maze of unanswered questions and limited information. Confronting the reality of an under-researched disorder, she was driven to create a supportive and informed community for others on a similar path.
Amanda herself lives with a chronic illness (Sjögren’s disease). As a local support group leader for several years, she has seen firsthand the power of connection and the impact of informed advocacy in improving quality of life and driving meaningful change.
Her passion and commitment to securing a brighter future for her son - one with greater understanding, support, and opportunities - led her to establish CUL3 Support & Awareness. With degrees in experimental psychology and over 15 years working as a public servant, Amanda brings an analytical yet empathic approach to her work.
She is committed to advocating for a future where individuals with CUL3-related neurodevelopmental disorder receive the recognition, research, and resources they deserve.
Amanda can be reached directly via email: nolan.amanda@gmail.com
Michael Wohl
Co-founder / Vice-Chair
As a devoted father to a child with CUL3-related neurodevelopmental disorder, Michael understands firsthand the challenges that come with navigating a rare genetic condition.
A respected researcher and professor of social psychology, Michael has spent his career studying health, well-being, and human resilience. His expertise brings a scientific and analytical perspective to patient advocacy, helping to bridge the gap between lived experience and research-driven progress. He is committed to advancing awareness, understanding, and scientific inquiry into CUL3-related conditions, recognizing that greater knowledge leads to improved care and resources.
