Simons Searchlight Quarterly Report - April 2025

Our friends at Simons Searchlight have released a new quarterly report featuring updates shared by families like yours! This report highlights how your participation helps researchers better understand long-term developmental patterns using the Vineland Adaptive Behavior Scales - Third Edition (Vineland-3).

Check out the latest report on the Simons Searchlight CUL3 page here: https://www.simonssearchlight.org/research/what-we-study/cul3/

This survey measures communication, daily living skills, and socialization - and for younger children, motor skills too. When more families complete the Vineland over time, researchers can see how abilities change across ages and better understand long-term developmental patterns. Growth charts in the report help visualized abilities across ages, and the more families participate over time, the better we can understand long-term developmental patterns.

Need help understanding the Vineland charts? Watch this tutorial video (https://www.simonssearchlight.org/2023/07/20/understanding-the-vineland-graph/) to learn how to read the charts and interpret the range of abilities estimated for your family's genetic condition at different ages.

Thank you for driving progress forward!

*Not part of Simons Searchlight but want to learn more? Visit www.SimonsSearchlight.org.