top of page

How You Can Help

Many colorful hands up on blue background with copy space. Concept of international human

Raise Awareness 

Here are some ways you can help raise awareness for CUL3-related disorders:

 

  • Follow and like the our social media pages and share posts to increase awareness.

  • Inform your pediatricians and physicians about CUL3 to increase their knowledge and understanding of the disorder.

  • Share the organization's website with family, friends, and healthcare providers to help spread information about the disorder.

  • If you are a parent or caregiver of a child with CUL3, consider sharing your experience or story with us for the website to help raise awareness.

background of teal wood men and women on white.jpg

Get Involved / Volunteer 

Here are some ways you can get involved with our organization:

​

  • Contact us to express your interest in joining the Family Advisory Committee. 

  • Share your experience as an individual with CUL3 or as a caregiver/family member of someone with CUL3 to help guide our work. 

  • Assist with organizing events or fundraising efforts to support our mission. 

  • Participate in surveys or other feedback mechanisms to help us better understand the needs of families affected by CUL3.

 

If you would like to volunteer in some other way, contact us to discuss potential opportunities.

Heart symbol made of three multicolored cords twisted on a blue wooden background. Creativ

Donate /
Fundraise 

  • Make a donation. 

  • If you are interested in helping to fundraise, please contact us. 

bottom of page